Tag Archive | meds

Don’t Let Bad Rule You. Life Can Be A Party

Hello!!

I know it’s been such an incredibly looooooooong time since I last wrote a blog. I was guilty of letting that shocker to my health get in my way.

As a refresher, I had been seven years seizure-free until December 16, 2014. What made my system whacky? Well I had some shoulder pain and the family doctor (without checking for possible side-effects) prescribed prednisone. This was a higher dose than what you get when treating for a cold and/or sinus infection (like a minimum of 10x higher). After a couple of days the prednisone counter-acted my seizure meds. It was as if I suddenly stopped taking them. Well, when one suddenly stops taking some meds, it causes the very thing the drug is preventing. So for me, three seizures that day.

7-9-15 not rejecting helpI was blessed during my six months of restricted driving. A neighbor (stay at home Mom with an adorable 5 year old daughter) took me to work and on my short days picked me up. She and I even went to a couple of garage sales – doing fun stuff. The folks at work (part-time job in retail) handled all the bank runs, even another department on the days when I would have been the only person to go.

But you see, I lost my independence – Boo Hoo. It wasn’t as if I did a lot of traveling – I don’t really. It’s just the issue of having to depend on others and feeling like a burden, whether they told me I wasn’t or not. It didn’t matter, because I felt that I was a burden and/or pain in the…

I’ve been back to driving for a month now. Would you believe that it’s still taken a bit for me to get over myself? I think what really helped was having an emergency at work and my boss (regional supervisor) calling me at home asking me to go back to the store – and be able to count on me to actually do this.

I have always had a hang up – I can and am willing to help others, happy to do so and don’t expect anything in return. But (now there’s a big word), when it comes to me asking for help…

7-9-15 Asking-for-helpSo, what is the lesson I’m trying to impart?

Well for one thing understanding that the quote is true and for me and other like-minded people to remember and hold in our hearts.

Don’t let health set backs ruin your outlook on life in general. Stuff happens – good and bad. Don’t get so wrapped up in what you perceive as “what should be” that you bog yourself down with nonsense (feeling you can’t ask for help). Basically, get over it, move on. This is not to say that you don’t have the right to be frustrated over the set back. You do. Just don’t let it run your life.

Notice my tagline up there at the top: The Party’s on – Seizures Saved my Life! Why do I say that? Well anyone can let the bad stuff in life run them down and ruin their outlook on life. Why not say that something adverse turned out positive? It’s working on perspective and how one views life that’s important.

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Told to “Deal” With It?

As anyone with a chronic health issue can tell you, there are days:

  1. of severe depression
  2. functional depression
  3. can tolerate people/situations – “forced” happiness
  4. really good days where you can’t wait to be out and about – you enjoy every second

depression-1Then you find out that your medication can cause depression. Swell. Or you find out your medication is used to treat depression (so why doesn’t it work for me???). Yes, some epilepsy medications are the same meds used to treat depression. Did you know that these same medications can cause weight gain? That’s just what a person who’s fought with their weight most of their life wants to hear. For me it’s a frustration.

Then when one has a chronic health issue, people tell you (while you’re depressed) that you can’t let this run your life. Snap out of it already. Anyone with chronic depression can tell you this isn’t what gets you out of depression.

On the bright side – I do have more days of symptoms three and four. These are the days when I can do more – with working on my business, around the house, etc. I even enjoy talking with people! When you have your own business that last thing is very important.

Also, if/when you switch to generic versions of your medications, you need to be diligent. Why? Because even though companies are required to exactly match the main ingredient in many cases that’s the only thing that matches. For every medication there are “fillers” even with the brands. Now some of the fillers can cause adverse side effects, but the only side effects listed are the ones the main ingredient causes. Well, isn’t that special? I know that for me it’s ever so much “fun” tracking down where the pharmacies get their generics. I suppose it gives me something to do.

I will not tell YOU how your particular issue should affect you, that you should “deal with it.” Each of us has to work thru our own situations in our own – positive – ways. What I will tell you – I hope for the best and that things work out for you.

Sitting on Pins and Needles

YIKES! That’s a painful picture! But if you think of the meaning it explains a lot:

It means feeling sharp anticipation or anxiety; in a state of suspense. Someone who is “on pins and needles” is very anxious and nervous. This not necessarily a negative emotion although the phrase is sometimes used in that way, it is usually used to describe someone who is in great anticipation of some event that they have been looking forward to.

OK, so maybe saying I’m sitting on the edge of my seat is better:

If a story keeps you on the edge of your seat, it is very exciting and you want to know what is going to happen next.

Hmm, well in my case I guess I’ll have to stay with the pins and needles thing. You see, the other day (2/7/12) I had a follow-up EEG. I haven’t had one in years – when you don’t have insurance you sort of let things slide. I won’t find out the results of the test until I see the doctor NEXT Friday – 2/17/12 – hence the pins and needles thing.

Yes, I have been living with my epilepsy since 1991. Yes, I have been taking meds all this time. A person gets tired of taking medication – especially when those meds make you tired all the time, and still fog up your brain. I’ve been having the feeling of late that the more foggy feeling is because I either don’t need as much of the medication, or I don’t need it at all.

Wouldn’t that be fantastic?

Since I had the surgery putting electrodes directly on my brain in August 2007 for testing, then removed and everything closed back up, I haven’t had anymore seizures. This is a major record for me. I truly want to be one of those rare people whose seizures stop because the brain’s environment changed.

Yes, I know there will always be some damage – face it having seizures causes some brain damage to the area where the seizures originate. But, some research I’ve read on fighting early stages of dementia suggest that Vitamin B12 and learning new skills (like more things for my business) can help build brain cells. I’ll be asking if this will work in my case.

So, here I sit (figuratively) on a BIG helping of pins and needles waiting for next Friday and to find out the test results. As I usually spend my prayers on many other folks, I’m going to be a bit “greedy” and ask that my hopes come true. That’s not a bad thing. Right?