Tag Archive | seizure-free

Only 2538 Days to Go

It’s been a while since I wrote anything in my blog (no I didn’t fall off the face of the Earth), many changes and just hadn’t gotten in to a new rhythm yet.

Well, I had found my rhythm and was (actually) feeling pretty confident. Then WHAM! A doctor (we’ll be getting a new family doctor), didn’t pay attention to my epilepsy and the medications I take. He only looked at my allergies – well that is a plus. The strength of prednisone he prescribed basically counteracted my seizure medications. It was as if I suddenly stopped taking them. Four days of taking the prednisone I had THREE seizures (in a 12 hour period) and spent two days in the hospital. I really don’t remember much of the week of December 15th.

1-2-15 resetAfter being seizure-free for SEVEN YEARS (2555 DAYS), this development is heart-breaking. It’s safe to say that my confidence level isn’t what it used to be; especially since I’ve never been big on having to ask for help. Someone needs my help – I’m there, what’s needed. I guess that right now I’m too busy being depressed and trying to find a way out of this pit.

I don’t understand some of the changes I seem to be going thru – they seem worse than before (not in any particular order):

  • I feel more tired and a lack of focus
  • It seems strange, but I seem to need my glasses more (I used to wear them all the time – but the last seven years I didn’t need them)
  • My emotions seem off – I don’t really seem to feel much of anything (although I am still furious with the family doctor for putting me in this situation)
  • I feel I have to fight to make my thoughts coherent – and explain myself clearly
  • In 2006 when I had sooooooooooooooooo many seizures I felt like crying each time – this time I just feel drained

1-2-15 acceptI know this sounds like an oh woe is me kind of thing. I guess the point I’m trying to get across – life isn’t always what you expect. It’s that “stuff happens” thing and you can’t always have things go your way. So, I’ve got to get my groove back, and not let things get me down.

Hey, it’s only 2,538 days till I start a NEW record!

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Thanksgiving

Yes, it’s that time of year when we reflect on all the things we’re thankful for. Although some of us also wonder just why shopping has gotten to be so important. Those Black Friday sales now have Thanksgiving pre-sales. REALLY?

Well, back to the original thought – thankfulness. No ranting here.

There are many things I’m thankful for:

  • My husband has been cancer-free for a year and a half.
  • I have been seizure-free for five years.
  • Our home
  • Our family and friends
  • My husband – that he’s even in my life. (he’s my rock/my life)
  • My business/clients

Every night when I pray, I start with Thank You God for everyone and everything in my life. Thank you for my husband (the love of my life), our home and thank you for today. Sometimes that’s it, others I will ask for help – for family, friends, and sometimes for me.

I’m thankful for waking up in the morning. I’m thankful for the abilities I’ve been given and those I’ve learned. I’m thankful that I can type my blogs – I’m thankful that people read them!

This year Thanksgiving will be different. You see in July my step-Mom passed away. Dad had surgery in October – still healing (it’s OK that it’s a slow process). Kim – being a FEMA Inspector will be in New York.

I’m thankful that the hosts of the B&B he’s at will let him stay during the holiday. I’m thankful that I don’t have to search for a place for him to stay. I’m thankful that he’s in a safe place. I’m thankful that I can spend Thanksgiving with Dad. I’m thankful that my brother will be able to be there too. I’m thankful that Kim’s truck will get me where I need to go (it’s a wee bit beat up ’95 Dodge with a LOT of miles), it runs great and that’s what counts.

Yes, I miss my husband. But I am thankful for our cell phones! We talk every day.

What are you thankful for this Thanksgiving?